Sunday, September 9, 2007
Sunday morn
Kai and I are by Caleb's side bright and early this morn, anxiously awaiting the arrival of Max and Jan...Caleb has had yet another slide backwards- but only a slide, I think..As the day progressed yesterday, he became more lethargic and shut down. After reading the CAT scan, the Doc's appeared to say that his left cranial ventricals are swollen and that he will have to taken off the intrathecal IV..the one line which directly feeds the brain his antibiotics. (which is what has improved his condition so far) The Doc's say this is pretty routine, but we are always disappointed and dismayed when this sort of thing happens. Frankly, we were just getting used to the full bore, full on healing mode and I know this back and forth is to be expected, but it is trying. We will spend the day with him and I will report back to you in the morn -- nothing more to say!
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31 comments:
Sharyn,
Hang in there. The light at the end of the tunnel is getting brighter!
Kevin
kevin is right, hang in there. positive thoughts are coming to you from near and far. stay strong! you are amazing and will get through this.
Dear Sharyn,
Just imagine us all there with you, a prayer circle around Caleb's bed, possibly singing "Morning has Broken", supporting, loving, believeing. Then, you might speak your gratitude for that image, and let it be so.....we ARE right there with you all, in mind, body and spirit. We speak to your strength, courage and will to persevere and greatest of these things....we speak to your enormous capability to LOVE.
Be well....we send you this and more every moment of every day.
In Love and Gratitude,
Melinda
Praying extra hard for all! Keeping our Pirate Flags flying high in the Hudson Valley!
Dear Sharyn and Kai, I read your letters everyday and find myself living vicariously with all of you. Everyday I tune in to my next chapter. Today I feel sad. I know it must be so wearing and tearing to go up and then down all of the time. So many of us are here rallying you on. "We'll make it" Love from wahbwah (my mom name)
Lake Erie pirates are with you today and everyday! We will also be sending positive thoughts to Caleb.
love always,
betsy
We are ...as always thinking about you all - Stay strong, united and this to will pass- we love and miss you-
Sassy and The whole dam-fam at The Farm
Sharyn and gang,
It's like climbing the huge sand dunes of Wellfleet when we were kids...frustrating...and the end result....rewarding and completely satisfying....fun. Yea, the up and down stuff is hard....ye' ole emotional roller coaster! But, just like the climb up the dune...three steps forward, two steps back......but you are making progress and will finally reach the top. I am confident that Caleb along with his friends and family will make it to the top as well! In my thoughts always.... love, jodi
we, like the tides, raise and fall with you...but remember this.. the tide always has risen and fallen and so does this circle and cycle of life and healing. i know he will ebb and flow too, and we are all by your side every loving minute of the day. he is a hero to me today. and so are you. i love you sharyn.
Sharyn, It was so hard to read today's post after yesterday's upbeat one. Life sure can be a trial. My heart and prayers are with you, as always. We are here in Wellfleet, watching those tides and dunes, thinking of you. We will be even as we return to Western MA today.
Amy
Dear Sharyn,
More rough waters and breakers to plow thru! Well my heart goes out to all of you. I have a clear visual------little Pac Men eating up all of the bacteria in Caleb's brain. This helped me many years ago when I was diagnosed with lung cancer.So while the antibiotics are not flowing the little pac men will take over!! This and lots of good thoughts--not to mention all of the love that is wafting around. With hugs and flying kisses! Penny on St.John
Dear Sharyn,
When I read the ups and downs of this complicated healing experience, I think about gardening. I know you, Caleb, and Kai are experts on the ridiculous amounts patience and, well, manure, involved. Know that over here on LPR the rosa rugosa is giving us a late burst of color. - T
Sharyn,
This valley isn't as deep as the others. This is a little rolling hill. If the doctors say it's to be expected then I guess we shouldn't be too concerned. They sure seem to know what's going on.
As always, the prayers keep coming.
Love and miss you,
Sue
i've been reading this blog for a while...and i just wanted to finally write and say that you are touching more people than you know with the words you write. you are so eloquent in your writing and ideas, and it's so helpful to have reaffirming words to read and apply to my own life. the stories about caleb, and about life, and just everything is touching to read- and inspiring. i think i've only met you once or twice breifly, but the things you write about embracing life and how things are too beautiful to be wasting your time at a job you can't stand going to, or doing things that don't stimulate and challenge you have really effected me in a postive way. i just wanted to say thank you for all the thoughts and emotions you are so willing to share. your strength, and caleb's strength are truly something to admire. :) always sending positive thoughts your way.
since my vacation on the cape , I have Caleb in my thoughts and prayers and read your bloggs everyday.
your family,your life and community has a uncanny similarity to mine and I have grown so fond of you as a mother and a women.
I will be sending extra energy of healing thoughts and prays to your beautiful boy during the day today.
And to you I send respect, admiration and continued strength.
my best!!!!!
Sharyn, Know the healing continues - even if Caleb needs to withdraw to focus on a level we can not see. Know love surrounds you all - holding you- ann m
I am so sorry - hang in there! You are in my thoughts...as always!
Laura
Hi Sharyn,
I have been off Cape for a few days now, and won't be back until this coming weekend. I just now realized that I haven't read the Blog in a couple of days, and was disapointed that I wasn't fully up-to-date on Caleb's progress. So sorry to hear about the setback...but as always...Caleb WILL pull throught this. Have faith in him(as I know you always do).
Love and Great Thoughts from Lowell, Ma
~Nicole Miner and Caleb Miner
Hey Kai and Sharyn,
Mike and I are always thinking of you guys and praying and loving Caleb. I'm sorry about the setback today. I am glad that Caleb is getting such close and competent care. Man, miss you guys so much and would love to hug you. Mike and I are doing awesome here in Burlington. He got a job at the City Market, the local funky co-op market/community center, in the produce dept and is loving it. It's all about the local foods and he gets it right from the farmers to put on the shelf. I am wicked busy already with school and meeting some wildly eco friendly folks. Eco freaky sometimes. I'm taking this awesome course called ecological economics right now that i am wicked into. and i already started doing research for my big thesis project - man, school is such a different experience for me, i love it. kai, hope you and liz got settled in well at your new place and school is going good for you guys. can't wait to see you two again. mike was telling nick canu up here the other day about the time caleb threw the bike off tim's bridge (i won't say who's bike, though i think that statute of limitations must be over by now :-))and we were laughing our asses off. all our love, katie and mike
sharyn, (or sharon,if you like?)i was walking spud again and got to spectacle pond road,for weeks spud has tried to get me to go right.i always go straight or left(this isn't political so don't go there),but today he wnt right and i made him go straight.he walked about a hundred feet and abruptly stopped,sat down and looked at me.i figured he wanted to go home so i turned around and started off.when we got back to the crossroads spud doesn't look back,but immediatly heads toward long pond road.we went on a awesome jaunt and spud got to meet a blind cocker spaniel and a juvenile golden.(probally friends of yours)it reminded me of you,and how your influence has made spud who he is and gave him the confidence to make his own choices.it has not gone unnoticed by your boys.we each come across strange roads,thanx to you we aren't scared to take them.so good to know that you and jan and max and kai and caleb are together today.that helps me know what family is,and what it can be.i,we,and us miss you,and hope for another day for caleb,one of happiness,mirth,and strength.like a pirate in the sand with a peg leg,stumble,stumble,roll.i will forever roll with you,and if i stumble you will keep me rolling.caleb is strong,and will be strong.i love you all. timmy
Dear Caleb and your dear family, Love for ,all of you, is all around you. Our prayers will not slow down. Hearts feel in unison.
Hi Sharyn and family,
May you wake up tomorrow to beautiful sunshine and Caleb back up to where he was a couple of days ago.... We are thinking of you daily and all that you are going through.
Prayers as Always,
The Young Family
p.s.sharyn someone brought you three pots of mum's.the first one is starting to pop.orange and yellow buds of love.buff says `meow,meow,meow,meow,meow,meo'.'
.//]/,sorry,but you know what he means.timmy
Sorry to hear about this recent set back- it must break your heart everytime. I am confident that he will rest and recoup again and again- as many times as he needs to- postive thought continue for you all from CT.
Dear Sharyn, We are all so grateful to you for finding the time to keep us all "in the loop". We are all riding this crazy emotional rollercoaster with you and your family. In the end after all the ups and downs and being scared witless it will feel good to be back on solid ground.Hang on.
Dear Sharyn,
Gosh what a day this has been, and what a ride. Today, at church, my prayers were not just for Caleb and continued healing, I sent a few up for you and your continued strength to get Caleb and all of us through this stage. Visulize a clear brain free of bacteria so "we" can get Caleb back to Spaulding and then WEllfleet. love Margie
Sharyn, try not to get discouraged, and more importantly, don't let Caleb get discouraged. The road back will continue to twist and turn, but you have to know that overall it's heading in the right direction.
On a lighter note, I have to tell you how Caleb startled me yesterday morning. Yes, you read that right. I was running an errand in my truck, heading down the interstate about 70 mph, when suddenly there was a pirate a few inches behind my head. My pirate flag, which had been laying in the bed of my pickup, got caught by the wind and hopped up onto my toolbox, unattached to anything, threatening to fly out into the road at any second. (As anyone heading out of Wellfleet will attest, the flags will rip to shreds or tear your radio antenna off once you get up to speed on rt. 6... so you've gotta take 'em down on the way out of town.)
Anyway, my first thought was 'there goes Caleb, being feisty again'. I slowed way down and hopped out at the next exit to retrieve it. A close call, but he pulled through!
All the best,
Jerry G
Sharyn, I heard Buuff say that thing timmy was talking about. He loves you and misses you. I know that it will be a good thing for caleb's little self to maybe fend for itself and remember how to heal with out the drugs...for a little bit. My thoughts and heart are with you all. I went for a walk with shannon today up to the house where Yellowbeard was home squosen. It is such a pretty house. And it was a nice day. xoxoxo amystj
To Sharyn and Caleb's other loved ones,
My family and I spent last week in your beautiful town. The outpouring of caring and support for Caleb - there and elsewhere -is truly inspiring.
Please know that you have three new friends thinking of all of you and sending positive thoughts your way.
Dear Sharyn:
I too like many vacationers to Cape Cod this summer have been following Caleb's progress on your blog and am moved each day by your amazing fortitude and humor you are able to find through this process..your words are truly an inspiration to each and every one who has the blessed opportunity to read them.
Your family and friends are all very lucky to have one another and it reaffirms the need to have special people in our life and to live each day to the fullest...a true friend is someone who is there in times like this and you have managed to acqurie a menagerie of them just with your power of words...that alone should give you the strength to will your baby back to health just knowing that even perfect strangers would consider you a friend...and I have no doubt if all these anonymous bloggers showed up at your door...you would welcome us in.
I decided to write today because when I logged on and read your "Sunday Morn" sermon, for the first time I truly felt your pain and sadness...and wanted you to know that all good positive vibes are coming through to your crew from my crew in maryland..my kids ask daily how Caleb is doing...and I repeately tell them how lucky he is to be surrounded by such great people who are making him all better and we should say a prayer for him and his mum each night before bed :)
Peace to you and your family and positve energy to Caleb.
Anonymous friends in Maryland
There were pirate flags in the Eastham windmill weekend parade today! Our thoughts and prayers are with you. Hoping tomorrow will bring improvements again.
Blessings & love,
Janet & David
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