I just want to paint a clear picture of what room 1228 is like for Caleb. Sterile, crisp sheets piled high, meds with funny names usually ending in "in" (colistin, amikasin)pumping through his veins, the cool up and down and all around bed which Caleb is glued to round the clock, a parade of Doctors coming and going day and night, nurses ever so faithfully watching over him, tending to his needs, the never ending poking and prodding, needles in his tummy, needles in his arms, needles in his brain, IV lines twisted up together and tangled like my emotions. Caleb moans and groans, is uncomfortable most hours of the day, is forced to wake just when he has gotten to sleep and is a sunken a shriveled example of his robust and healthy former self. In spite of this he chose to write todays blog on a piece of paper with his nurses looking over him....
" Hello everybody..I am feeling well."
Now - I am a firm believer that we all are unique and special in our own ways, and that when we find our calling in life, we have something very important to add to this world. I am also aware of those few special creatures who walk this earth who are reminders of how it can be. I repeat- how it can be! Caleb is one such creature. Caleb never quits - never! He is always the example of kindness and generosity. He is rarely impatient and is always joyful. He is not knowledgeable in the way that this world would judge him, but he is the smartest person I know... because he has learned that what you give is what you get! It is a tangible measurement and as you are witness, he receives in spades!
I am humbled by my child; this young man who walks among us with Grace and dignity, who treats young and old alike and who finds the fun in every situation...who invites strangers over (usually for dinner at moms) who gives with open heart and opened mind. Who always looks on the bright side of life..
"I am well" Need I say more? mumsie
Thursday, September 13, 2007
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WOW!!!
Good morning sharyn...good morning caleb....and what a beautiful day it is here in wellfleet. The sun is out, the sky is brilliant blue and cloudless. I have been up for hours, went for a bike ride, had coffee on the bench. Ran into Timbob and Haley, bought a new t-shirt at the thrift shop for 50 cents. Life is good. I am presently at your house, about to roust max and tell him I brought quickies from the Box Lunch for breakfast. Spud barked at me once when I got here, but only half-heartedly. Buuf came out to say hello too. I gave them both a pat and told them to enjoy the day. Please give my love to yellowbeard. amy stj
Hello Caleb, I am very glad you are feeling well.
Took my breath away.
Caleb,
Your words remind me that we all have a choice in how we feel no matter what the circumstances. Thank you for that very simple and profound reminder.
Lesa
Caleb
You are one strong pirate with a great crew accompanying you.
Sharyn
I think of you everyday, as I take the yellow cleaning cloth that you always looked for at Willys. I now know the many strenghts you have.
Thinking and praying for you all
Jean
i cannot find the words, so instead i'll use one of those silly typed faces
:•) !!!
xo
abby
So good to hear that Caleb can let us know that he is feeling well on this beautiful day.
Sharyn, I love the way you write from the heart. You and Caleb have taught me so much in such a short time. This lesson has been presented to me many times before but this time it has finally sunk in. And that lesson is that I am so grateful for my life, my health and that each day that I wake is a blessing. Each breath I take is a gift from the universe.
directing more healing vibes to Caleb . . . strength and energy to you mumsie . . . and ofcourse I remember you both in my prayers
What you said about Caleb today reminds me of this line from the Beatles song . . .
". . . and in the end - the love you take is equal to the love you make . . ."
pc
september 19th is national talk like a pirate day.
So great to imagine him writing those words. I cried and laughed. Thanks for sharing Sharyn and Caleb. Tell him to write more. . . it's amazing.
xoxox,settie
Hello there Caleb,
feeling well
well-loved
a well of hope
(mother writes well)
surfs well
lives well
even though i know you not so well, i am glad to hear that you are feeling like yourself.
Today is Rosh Hashona -- the Jewish new year, a time of prayer and of renewal. Please know that many prayers are being offered for Caleb's recovery and renewal on this special day.
Caleb and you, Sharyn, give proof that there is so much good in this world. Thank you.
Russell.. you are a freekin miracle. Always, even before this~ you have never fallen short of of a kind, hilarious, humble, crazy-billy ass pirate! I love how when I would go away to Guatemala and come back, you would always embrace me as I had never left Fleet.. you understood my love for it there, but always said with your handsome grin: "Welcome home, it's good to have you back." I anticipate the day when you can meet Chema, and initiate him into our billy-lad crew. I miss you tons, but am so glad you feel well enough to write us~gracias hermano! Anytime I have felt like complaining, or felt down I think of you & laugh, cry, or smile simply knowing you are you, and getting better..there is no point in being bitter, or neglecting that which is important: life, family, friends, work, health, and adventures. You, Kai, Max, and Mumsie have taught us well.
I love you lad.
Xo.. Jean
THAT A BOY CALEB! Rock on and keep healing!
We'll keep the prayers & positive thoughts going!
Life is either a great adventure or nothing.
(Helen Keller)
Not an emotional sort, but that stopped me short. On some folk (as Pogo used to say) you don't need to read the label. All shall be well. jack
hello Caleb
I am so glad to hear that you are starting to come out of this funk. and dont worry mumsie "the force is strong in this one". the love that his family and friends have for the lad will help him get stronger. soon all those tube and needles will be popping out and smiles cardgames and laughter will take thier place .I believe this with all my heart and soul.
XXOOXOXOXX
FRANNY D & PLUMA (ruff!ruff!lick pant,pant,)
hey old lady,
You sound a lot better today. I can see Caleb also notices. He feeds off your energy lady. So keep the spirit of the crazy old lady alive. And in turn bring back our yellowbeard. Tell him That I miss him dearly with a big judith jag cry. And maybe tell him a couple of things I can't say on here also. I bet when he gets better he will eat so much he'll swell up like a wood tick.
much love
uncle judith
p.s. going to your house to party like a rockstar right now. Free drinks till 2 I heard. Fleetstock "The Duece" going on right now can you believe it. We won't destroy the house to much. ha ha
Dear Sharyn-
Todays blog entry was heartwrenching but so needed inorder to fill in the blanks of our imaginations. The piture is now so much clearer about what it all looks like in the eyes of Caleb and you ,my friend. Thank you for taking the time to show us, through your words. Thank you, thank you, thank you!!!
Till later-xoxoxox
P-town girl
Bless his pirate heart.
And yours, Mumsie.
Love,
Joan
That is amazing. Tough bastard. That's what Mike just said. We're crying. Caleb is so strong. Please tell him Katie and Mike miss him and love him SO much.
What a beautiful day it is with tear filled eyes and a heart full of joy.
I am so glad to hear that you are felling well Caleb!
I had today off for Rosh Hashona, the Jewish New Year. The first thing I did was check the blog and right after that I started a letter for Shaye. I have been meaning to write a letter since it first appeared on the bolg, but being a teacher with the start of the school year, I never found the time to sit down and write one (I hope it can help him).
You are in my thoughts all the time. This is my second time checking the blog today and I am glad I did. Thank you for the words you write to us Caleb! You are the strongest pirate I know. Thank you Sharyn for sharing your journey and feelings with us.
I hope the new year will bring more healing with no more set backs!
Love,
Kim Harris
Dear Sharyn,
I don't write often, but want you to know that you and Caleb are in the back of our minds and hearts all of the time - and in the front many many times a day.
Wonderful to hear that Caleb can write, "I'm feeling well."
Much love to you both from another Grace,
Gracie and Simone
just put a little pepper with that salt.......jodi
Amazing.... Amazing words,amazing people. I am humbled.
Alison Manchester UK
Hello Caleb and Sharyn,
You both take my breath away. Keep pushing onward Caleb, please keep writing the blog with us. You guys are amazing, reading today's entry gives a whole new outlook to life.
It is a beautiful day in Pa. and now it's even better. We all stand together, with you, each step of the way in thoughts and prayers.Enjoy the sunshine and blue sky.
Unbelievable!! there is definitely NO WHINING in room 1228, is there...I can imagine you are awed by him - we all are - you guys show the rest of us how to do life on life's terms - I'm sure you're probably hyper-vigilant, but in case you lapse into normalcy- remember -a hospital is FULL of nasty bugs, so
don't let ANYONE touch that boy or those "needles" unless they've washed up and gloved up
NO MORE FEVERS! NO MORE FEVERS! NO MORE FEVERS!
make sure his wings aren't getting crumpled...
Yay! A message from the man himself!
Zana
HELLO CALEB!!!! robin & priscilla
Hi Caleb, Hi Mumsie
"May today there be peace within you..may you trust God that you are exactly where you are meant to be..believe that friends are quiet angels who lift you to your feet when your wings are having trouble remembering how to fly." Think of you daily. God Bless. XXXXOOOO
(as the kids call me) MUMLEE
Healing thoughts for Caleb are far reaching.....ours come to him from New York.
When we arrived in Wellfleet for our annual 2 weeks in heaven, we were instantly struck by the Pray for Caleb signs everywhere.
Something spoke to me -strongly- and I needed to know more - I was so afraid of sounding like a nosy tourist, and I kept quiet,and in the dark - thinking I was being respectful ...well, it wouldn't leave me alone - I NEEDED to know about Caleb, waht happened, how was he......when I heard a rough idea of what had happened, our whole family began trying to check in on Caleb throughout our stay....I actually thought of him on our long ride home.....a young man I did not know, yet I felt drawn and attached to this tragedy....weird.
Well, I thought of him so often after arriving home, I found my way to this blog.....now, I check in each day, and tell my 3 children "how Caleb's doing"!
We all sort of smile, because we know it's a little weird....but we care - all of us.....
So Caleb and Sharyn, maybe we'll just have to meet next August in Wellfleet, and have a drink, so we can see the guy we are all pulling so strongly for!!
Caleb is so strong and determined and you Sharyn, are exactly what being a Mom is all about - when you speak of feeling at one with your boys....well, I hear you, same for me - and my thoughts are with you too, because I KNOW, that every pain or discomfort HE feels,is yours, every rise in temp,new symptom or worry is felt in your belly.....but the other side of all of that is also feeling every accomplishment and joy of his, as if it's your own - and it IS!!
He'll get through this....and it will be life altering and it will make all of you even greater than you are already!
So, we are here, in NYC, thinking the very best for you both - every day.
NK
New York
Caleb and Sharyn, As someone else mentioned, today is Rosh Hashanah, and like many others, I offered prayers for Caleb today. On this holiday we eat sweet things, apples and honey, to hope for a sweet year. We hope this is also a sweet year for you. Keep on fighting!
Amy
Hi Sharyn
Ive never been lucky enough to meet you or Caleb, but heard your story while i was travelling through Fleet in the summer.
back in England i check your blog everyday, and send hope for you and your family from the half way round the world!You are such stong willed people, and i am humbled by your writing.
x
Dear Caleb and Sharyn,
On Rosh Hashanah, the Jewish New Year, we look forward to a rebirth and a healthy and happy new year(5768 for us). I also look forward to a year where a policeman does not have to be hired to guard the entrance of the synagogue. That being said, there is a special prayer for healing and "Caleb Potter" is the name I said out loud. When I returned home and read today's blog--there was your writing, Caleb..how joyous...Judi in St. Paul
i don't give a shit about convention now; the fact i am a teacher or whatever... oh my fucking god. this is buddha and christ and allah speaking...and all who walk a path of compassion. peace and LOVE. listen. learn... from all who are in this experience. period.
lisa b should mind her manners.....
teacher of what?????
Caleb,
Write On!!!!!!!!
or should I say Right on!!!!!!!
I suppose these times have tought us all a lot about caleb and ourselves. I used to think of my hometown, Spfld, as a ghetto wothout much good in it- and so I left. As I grew I learned more about the place that helped make me me and realized that the smartest man that ever lived was also from Spfld. Obviously NOT Homer Simpson, but Dr. Suess. In times like these I see that he knows how to say what I feel best so to what's infecting my lad....“I have heard there are troubles of more than one kind. Some come from ahead and some come from behind. But I've bought a big bat. I'm all ready you see. Now my troubles are going to have troubles with me!” He sure is from my hometown! :c) And to all those on this road to recovery with Caleb.....“Be who you are and say what you feel because those who mind don't matter and those who matter don't mind.” And to our best friend, Caleb, whos the kindest pirate to ever sail the Wellfleet seas.....“Today you are You, that is truer than true. There is no one alive who is Youer than You.” And we LOVE you!
Hugs, Kisses & Blessings~ xoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxo
Amazing, magical.....you and Caleb continue to remind us all by your astonishing examples what the essence of life is. This blog is pure poetry. Thank you for sharing your very special selves with us. Sending you love & good thoughts. alycia from sherborn
Dear Caleb, Awesome, just awesome!!! Keep talking to us! We love you Yellowbeard!!! xoxoxo
lisa b minds her manners sometimes and sometimes she doesn't.
she's a teacher of life and other things.
she LOVES caleb and his family
for anonymous after lisa b
“Be who you are and say what you feel because those who mind don't matter and those who matter don't mind.”
Hi Caleb!!! UNBELIEVABLE!!!
I know you are a shellfisherman but when you get well you might consider a job change. I work in a high school with special ed, emotionally disturbed and learning disabled kids. Boy could you be wonderful in a classroom. Do you mind if I use your story as inspiration for them?
Sharyn,
What I really want to know is have you used one of my boredom relief remedies in a previous post and hung a moon yet in Room 1228? Great weather for it today! What are you waiting for?
I am one of the fortunate ones here that has had the great pleasure of watching Caleb grow from a boy to a man. Sharyn, I could not agree with you more of your description of Caleb being a person that doesn’t quit, is kind, generous, rarely impatient, joyful, always finds fun, treats young and old alike and smart! I know another person just like that with all the same great qualities. Her name is Sharyn.... As I said here yesterday about you and Grace, “The apples don’t fall far from the trees”! What you have given is what you have got! Thanks so much for sharing Caleb and your family with us all.
Kevin
we are who we are,we were who we were,we will be who we will be,and we will always be one,time never forgets and always has hindsight.have not spoken for a couple of days,can't see the keys through the tears.i know there are holes in heavens floor.as for lisa b,the next time i see her i'll spank her bootom,then give her a big smooch and hug.she only luv's caleb and didn't mean no foul.sharyn and caleb my tears are dry and i send my luv to you both.rosh hashona is a holy day of prayer and renewal,how perfect a time for us to reflect on our lives,family,and growing number of friends.this blog has become spriritual to me and all your words and prayers have made me grow,but not as a person.i have realized that all peoples can come together.p.s. clint,you rock,ch/dad thank you and for your thoughts and words thank you.we are,we are,we will we will,we have we have.luv and life and glory.
Yes!!!!!!
It felt good reading this one....
Stay positive....and sing as loud as you can!
Well, well welllllll.......a wellspring of joy, a feeling of well-being, a welter of emotions, a welcome change for the better.....well, well well in Wellfleet soon, soon, soon.....
peg from PA
Lisa B is one of the best of the teachers/people who raised the children in this village. She is right, no matter what you call your spiritual power, Caleb feeling better is amazing. Very wonderful and amazing.
me again.lisa b your stealing the thunder and pooping luv.has anyone heard from the clemens from texas?hope and prayers to them and the whole lindsay/potter clan.
Caleb, it's so great to hear from you! Please keep on writing, we would all love to hear more from you. Try to be patient - things *will* get better!
Jerry G
Is there any way that the community that has shown its presence on this blog every day can unify to oppose what this US president is leading (what a disgustingly inappropriate adjective)this great nation towards. I am angry and I cannot take it anymore!!! I am trying to watch his speech with some kind of objectivity and it is not possible.
As the Dalai Lama says "Kindness is my religion" so it is with Caleb - kindness, tenacity and generosity of spirit.A boy to make us all proud and honored to be part of this journey.
Prayers,
Carol O
Hi Caleb and Sharyn !
Love from Texas, it was great to hear from both of you. Caleb, you have become a major inspiration to so many people, myself included, and you did it by just being yourself. You always manage to make everybody feel so loved, and that is my favorite thing about you. So though you may be uncomfortable and confined to a hospital bed, remember that we are love you and are hear for you. My brother, Dmi, will be in Boston over the full moon, Sept 26th and was wondering about visiting, but doesn't know how to contact you all. If possible contact me at clouds709@aol.com. We love you all so much. Keep up the good healing,
Pilar
YOU GO CALEB! ARRRRRRRRRRRRRRRRRR!
Keep doing what you're doing!
You are an inspiration to us all!
Much love and peace to you and your family.
tc
Hi Sharyn,
Better news today. Keep it coming! Prayers continue. You go, Caleb! Tough as nails is how we raise 'em in Ohio.
Love ya much,
Sue
Dear Caleb,
We will all sleep a little bit easier tonight knowing that you are well.
Thank you, thank you for giving us so much, your stength is amazing.
Audrey
For those of us who have just "met" Caleb from this blog and our experiences in Wellfleet this summer, this picture you paint of Caleb's world in MGH, along with the vibrant images conveyed since the beginning of this blog, make it seem even MORE miraculous that he is writing and fighting after all that he has been through. AMAZING, simply amazing! and wonderful and inspiring....
S.S. Mom
Hey Sharyn
I never met you or your son Caleb but I was in Wellfleet for a couple of weeks this summer and there on July 4th when Caleb was injured. I cannot begin to know the rollercoaster you are on, but I do know what it's like to love your children - I have a daughter and a young son just a few years younger than Caleb. I think of you and your family every day and check in to see how Caleb is doing. You are an incredible woman to keep everyone posted on his progress. No wonder you have such strong children.
Keep looking up.
A Vermonter Currently Displaced to South Carolina! :-)
Nancy Ray
Dear Sharyn - well, again you send me off to work with tears - not really of sadness, but of every emotion I can think of. Thank you for sharing.
WOW!!!!! says it all.
Claire
Hey YOU who told Lisa b. to mind her manners. . .
Mind your own business. This is no place to judge. Only LOVE here!
settie
Caleb,
Short and sweet, the way we like it. You are well....a thousand, thousand thanks.
Jackie
P.S. Wisdom is better than knowledge. Wisdom comes from within.
hope, blind faith, love.......it really works, it really makes a difference. When my Dad was shot down over Vietnam and was listed "missing in action" for three and a half years before he was officially listed as a "prisoner of war" and spent seven years being incarcerated and tortured.....my mother, not once, waivered in her faith..... that he was alive and would someday come home safely. As kids, we knew "missing in action" meant you don't know if they are dead or alive.....faith, hope, love....he just celebrated his 77th birthday!
when my cousin had a diving accident and became a quadrapelegic he spent a year in the hospital,"died" several times, and had many infections...spent another long bout in rehab..........that was about 25 years ago....today he lives with an aide, works on the computer and has made a life for himself....faith, hope, love.....
my mother has had three different kinds of cancer, and several heart attacks......she gardens daily, works like a horse and has a great attitude and love for life.....faith, hope and love.
with all of us praying and having such immense faith, hope and love, Caleb is in good hands, and although the ride gets bumpy....he WILL be OK, he WILL be home when the time is right, he WILL "be"...faith, love,hope........
jodi
Dear Dear Caleb...Thank you for sharing your heart and soul with us so graciously. You are an inspiration to all...we only hope that our words, thoughts and deeds lift and sustain you during this transition time. Please know that you are never far from thought, and that we are loving and nurturing you from afar. Blessings my young pirate friend....and Dear Sharyn, how your heart must expand everytime you read these messages. I so sense the bittersweet essence of your writing, and am filled with emotion, wonder, gratitude and humility for your allowing us to venture down this road with you. Thank you, thank you, thank you. This process reaffirms the good in all of us, and allows our "more perfect" selves to emerge to give hope, courage, grace and the cosmic glue that connects us all...abiding Love.
With Deep Love and Gratitude,
Melinda
happy tears are shed
pirate writes a note to us
I am feeling well
"When you begin to touch your heart or let your heart be touched, you begin to discover that it's bottomless, that it doesn't have any resolution, that this heart is huge, vast and limitless..."
A Braintree Mom
dear caleb -- a blessing to hear from you and i hope every day keeps getting better. it is true, you are so kind and loving --- even to us oldies! love to you and family and friends and everybody and love to lisa b --- it was an ohh my god kind of day!
Man, it's so great to get a message right from Caleb- thank you so much Sharyn for passing that along. It reminds me that these messages don't go just to you, but that Caleb is able to hear them too. Please let him know how much its meant to feel connected to him during all of this. I can't wait to see him again, but in the meantime, I've never gotten so much out of some words on my computer. We're pulling for you Caleb, and I can't believe that, at the same time, you're able to give us so much encouragement, right back in our fat faces.
Love, Neil and Carrie
"It takes a real storm in the average person's life to make him relize how much worrying he has sone over the squalls"
-Bruce Fairchild Barton
*in the wake of Hurrican Katrina
This such an amazing and TRUE quote, I found it this morning while searching for something else. Thought about Caleb and Sharyn right away. all my love for the weekend.xoxox
p-town girl
Hi Sharyn ! Thanks so much for your continued care of making sure we are all included in Caleb's healing.....all the steps and ups and downs and back and forths. We have become loving friends, even though we never met him , yet. We will. I have the pottery shop down at the bottom of Bank Street, across from Chad, and have at least 5 or 6 people ask who Caleb is, every day, when they come in off of Rt. 6 to explore Wellfleet and have seen the signs for him all over the place. So I am explaining about him, with your up-to-date news, as best as I can, and they all become his best new friends. I also have a pirate flag in my studio, and that helps them understand all the pirate flags around town.
So, it must be exhausting for you to do, but please keep it up. We are very tuned in and feeling so much love for you all. Peg Andre
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