As I was walking along today on the brick sidewalks of Boston, I was reminded of the strong urge to live;survive, that is in all living things. I spotted a petunia, totally surrounded by hot bricks and mortar which had found it's way through one tiny little crack in order to reach sunlight and rain. It was bragging about it by showing off its' scarlet bloom. I believe I am witness to this miracle each day.
My most favorite Infectious disease dude was in today to let me know that Calebs' white blood count had dropped a dramatic 10 points from yesterday. This is magnificent news for us, coming much sooner than we expected. Caleb is still in danger at all times of contracting yet another infection, especially since he has so many lines running in and out, and that is why we donn the gowns and caps. I try to pass myself off as a surgeon as I walk down the hall. Hasn't worked yet!
So to celebrate this radical drop in numbers, I had a manicure and God if I didn't find myself checking out the veins of the Korean girl sitting across from me - Good for an IV line I found myself thinking.
Caleb still has a mystery collection of fluid in the frontal part of his brain and that will be the next thing which will be addressed - if it is old blood, it will absorb. If not- the unthinkable - surgery again in the same area. I cannot go there and if you wish to put your thoughts and energies into that area it would be good. He rests easily and last night we watched the Simpsons so that we would have some semblance of our real lives. A couple of people have requested an address which I believe goes something like this : Caleb Potter Mass General Hospital 55 Fruit St. Boston, Ma 02114. No need for a room number since we get moved so frequently. It is always nice to receive cards for him. I remain positive and grateful. Ever yours, mumsie
Saturday, August 25, 2007
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Glad to hear you did something for you Sharyn, I was thinking to remind you to do that, and am content knowing you are.. The Simpsons surely can help get you guys back on track, as it is a good sense of reality for people like us! Love you.
Xo..Clancy
Sharyn, Good news -1. a lower white count and 2. that you are caring for yourself as well as your family. Every cell has creative potential- thanks for the info so we can all visualize the frontal area as vibrant/healthy tissue allowing for the full functioning brain to match the strong spirit guiding us all. ann m
Sharyn, That really is good news. Let that infectious disease dude know that a warm welcome awaits him in Wellfleet, even a lobster if he continues to move that count down. The Simpsons are balm for the spirit clearly. All our love to all of you, especially to Caleb. Jack
monday morning @ 4a.m. lb & i set sail (via delta air) for cape breton...we checked the blog b4 departure & found the u-tube posting w/ setti singing....that was our sendoff...while grabbing a cup-o-joe @ the airport the woman behind me had a pirate t-shirt on so i commented that is was cool...her response....YYAARRRRRRRRR.
to return just in time last night for yellowbeard and better news was just the treasure i was huntin' fur...since our last reading was @ kyle & polli's on wednesday....cedar & ennie were in fine form last evening w/ their respective "cycling ships" about town...cedar's chain fell off the bike so he had to fix it in true pirate fashion under the night sky with a butane lighter to see by...i told cedar i was sure he could fix it in the dark bcz after all..."you rrrrrrrrrrr a pirate"...all the kids were gathered round the "ship" watching...for the first time there were an equal # of under 12's @ the circle as there were adults...
CUDO's to clance for her fabulous pirate CD...it'll make the narliest of pirates want to hummmmm along!....xoxoxoxo d
Dear Sharyn,
I was thinking of YOU today. I am so happy that you treated yourself. My gosh, you deserve it! Its good to take a bit of time to re-group and get back to center. Hard, but good.
An Irish Blessing for YOU...
For all the love she can shown to me
May God give back to her 100 fold.
For the times spent ministering to the needs of others
May the Lord minister to her in all her needs.
For the many times that others needs came first,
May You bless her beyond her wildest dreams.
> hi sharyn et al.. deirdre and i just got back from
> cape breton, where
> we visited kyle and polli and stayed in our friend
> jim's very cool
> off-the-grid house and i got to 4 wheel a quad and
> gravely his 160
> acre "lawn". i remember talking to you at the end
> of june about
> moving up there because things were just too
> politically creepy and
> summertime crowded..and now, after being there and
> back..well.. yes
> we are buying some land, but wellfleet is so in my
> blood and heart
> and soul, i cannot imagine giving up my home
> here..and i felt so far
> away from my community even for just 5 days..i can
> only imagine what
> it must feel like for you in the
> everydaydrudgeofhospital without
> getting to wear any of your fru-fru stuff! and
> without having all of
> us to harrass you! you are an amazing,strong and
> beautiful woman and
> mumsie. i talked to ch cole today at the prayer
> circle, and he said
> jan was going to try to get into the h2o today. what
> a great elixer
> for him. he has been so wonderful. how i wish we
> could just bring
> wellfleet to you so you could be embraced by the
> water and our
> incredible love for you. your house is still
> standing..the circles
> go on, and my girl and i send the tenderest and
> sweetest love to you
> and all of yours. the best way i know to show love
> is to cook..i
> guess it will be when you are all home, safe and
> sound! (food
> fight!?!) i picture that 100 times a day...( you all
> coming home, not
> NECESSARILY the food fight!) oxoxo lisa
God could not be everywhere; therefore (s)he made mothers.
Arab saying
Sharyn
The very best news on both WBC and manicure!!!!!!!!!!!! The positive thoughts and prayers are constant. Margie
Sharyn,
Good to hear that you are taking care of yourself as well. The spirit within us that gives the drive to push on, consciously and unconsciously is so amazing. Caleb is a clear demonstration of that as are you.
Lower white count is great news. Each step is progress and baby steps eventually lead to sprints and marathon wins.
Positive thoughts coming your way throughout the day.
Jeff
Hello Sharyn,
Caleb is very strong and brave and he really wants to make it home. A lesser person would have given up by now and succumbed, but he has great courage. I know he is doing his best to bring his pirate ship back into port. If will alone is enough he will make it.
Haley said she is going out for dinner tonight with Kai and Max . She is an interesting person, my daughter...she reminds me of the ocean...at times a sparkling delight and at times a terrifying storm...for your boys she will be a delight as she loves them all and misses Caleb terribly. Shannon also says that Wellfleet has not been the same without him. Our best wishes are with you.
I know what it is like to sit in neurology with a sick child. My autistic son Brad, has a history of neurological problems. He is at his grandmother's in Wellfleet now and had a seizure in Stop and Shop which resulted in a mild head injury. Mom said Cape Cod Hospital was great. He is fine but these experiences change your family forever. All moments from this point forward will be more brilliant, more special. It is a loss and a gift all at once.
Suzanne
Hey Sharyn,
Did you have on red lipstick during your manicure? Every good day is one less bad day! Another good one! Great!
Kevin
Sending a card for Leb this week, praying and thinking of you every day.
--the Sykes from Jersey
Every moment counts. For people and petunias!
Dear Sharyn,
Was able to get to a computer for a few minutes...are keeping you and yours in thought and prayer. Will work on immune stim for Caleb to deal with white blood count. Sounds like you are holding your own. Do not loose faith my dear. Will be in touch...still in Maine. Thinking of you all every time I see a beautiful sunset, hear a loon, see a child running into the water to catch a wave...
With Love and Gratitude, be well...Melinda
Hey Sharyn,
God news....and I am glad you took time for yourself.....Good veins?????hmmmm Might need them.
Just a joke breathe and take 5 for you love hugs and thoughts to all
Sharon,
When the time comes...
www.craighospital.org
Dennis
Two nights ago I dreamt of bizarre health care scenes...the most memorable were:
feeding an old lady in her sickbed with breast milk...and... then a doctor (who seemed so dedicated) was standing on his head in the hospital room. I think that's what Caleb's doctors are doing -- standing on their heads to help the lad. And you, Sharyn, are providing the healing mother's milk of love for your firstborn. A short but intense dream that brought me into focus. Much love, A.
Sharyn, I am so glad to hear that the white count is down; and (like everyone else) quite pleased you took the time for a manicure! You really do have to do little things for yourself as you make your way along - it's a long haul. I also wanted to let you know that here on the Connecticut shore, my family and I have a beautiful white candle surrounded by little shells from Wellfleet that is our "Caleb Candle" and I keep it lit whenever I am home. I hope it is helping - it certainly makes me feel like I'm doing something! Whenever I light it I say a little prayer and also ask my mother, who has passed on and was an RN to boot, to watch over your Caleb too.
Sharyn & family - first time I've written, but felt called to so today. I wanted to let you know that even though we are not Wellfleet natives, we have been praying for all of you. Our family, along with six others, has been vacationing in Wellfleet for well over 15 years. We are so thankful that we get to spend 1 week out of the year in your town. This year when we arrived (the week after the 4th)we were immediately drawn into Caleb's story and have been following along with his progress ever since.
My husband and I are also blessed with 3 sons and there is something so special about that. Your writings are so powerful. "Keep your chin up", as my grandmother used to say. Sending up prayers from Rochester, New York. GOD IS WITH YOU.- Judith
Sharyn you are an inspiration to mothers everywhere. Each night as I lay with my baby and we pray together, I envision that we join in the Cape Cod collective healing energy that flows into the Bay and washes up on the shores of downtown Boston.
I love your story of the petunia. It reminded me of a story that an Islamic man in London told me. I was working abroad during Sept 11 and like everyone else, I was devastated over the events. I was in this man's taxi en route to my office the next day. We cried together on the way as we reflected on what had occurred. He encouraged me to remind myself every moment of every day that even during chaos we should look to the trees and flowers - that they still bloomed in the midst of difficult times as a reminder of the life force within and around us.
Sending you powerful thoughts of love and peace 24/7.
Love,
Nora and baby Nathaniel Eldredge
Sharyn, Your journals are so inspiring and remind us that nothing is more important than our love and support of our "collective" children. All my best to you and Jan and the boys. I think of Caleb daily and I appreciate sharing his recovery through your lovely writing. Beverly From Vermont
Sharyn....
I can't recall whether I had the dream last night or the one before, but... Caleb was strong and himself in everyway. We charged up to Boston to see him and he looked at us with two beautiful blue eyes and held us tight and told us all the things that have been on his mind these past 7 weeks. He was hilarious as always and didn't want us to go back to Fleet without him, so we kidnaped him, of corse! :c) And waking up this morning knowing that dream will come true soon gives us hope and inspiration. We will focus on his healing and strength for caleb is a Wellfleet warrior, with his family and friends with him throught this battle. He will prevail and continue to grow stronger with each passing minute. We love you, Jan, Kai, Max and especially Caleb with all our hearts. We miss the Potter presence around here aand hope to see your lovely face soon! Be Well!! xoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxo
so, writing from NM.
we had the most incredible thunder/hail storm yesterday.. all i could think was that the pounding hail was going to destroy my beautiful gardens of salvia, echinacea, lavender, meadow sage, 8 ft. high sunflowers..
woke up this morning, read your blog and alas, all is well!!!! Caleb is as tenacious as that little petunia forging thru the cement....
peace, love & light
As an infrequent visitor to Wellfleet I was checking to see if the Oyster Festival schedule had been posted yet when I began to read the beautifully written reports of Caleb's accident and progress. As I read a series of comments the tears began to stream. The evidence of such a loving community really set me off! May all the supporters and supportees (NOW it's a word) be equally blessed. And may those who don't have such a community find one.
sharyn, i kid you not, foxes have been running rampant in wellfleet these past weeks. the latest little guy dashed in front of me and ran right into your yard! caleb's fighting spirit abounds. we cant wait for caleb and you to get back here for good. always in our thoughts. hugs and misses,
xoxo brielle, randy, and spud
Or create one where ever you are. Real communities are made by real people doing real work to make it happen. It is an ongoing process, like Caleb healing. Peace, Susanna
Hi Sharyn,
You are doing good girl. So glad Calebs count has dropped. Keep those bugs in his ears clean..
Glad you took some time for yourself. Our prayers are always with you all and rub Calebs nose for us.
Glad you will be in fleet hope to see you. Kate and Mike are in VT.
They send hugs and love to you Mumsie and of course yellowbeard.
Thinking of you! Your an amazing mom Sharynxoxoxoxxo
The DeVastos, oh Aalyah is walking and everyone must clear the way.
Continued kisses to Calebs health.
blowing kisses from baby.....xoxox
You know, when you and your clan would tumble into Uncle Frank's in the summer of 2003, at those wee hours before your forays into Wellfleet's flora and fauna, i'd always get a little warm feeling, cuz you guys always brought the sunshine, you know? You always picked up my morning... and I see you and your family still has that amazing, natural energy, which makes every day just that much better.
I just found your entire blog at work and had to put my glasses on so folks couldn't see my eyes. Sharyn, I am so grateful for you, sharing your beautiful writing, your insightful thoughts, and your persistent urban flowers... You've definitely added hope & love to my day and well into the future.
Love you,
Melissa
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