We are nearing the end of our stay at MGH. Caleb was in ICU over Christmas which meant we had to move away from our beloved Ellison 12 where I consider the whole tribe of nurses extended family. His tube which connected to the shunt was removed and we are test driving the idea that he will not undergo another surgery before we speed off to RHCI in Sandwich for the next phase.
Christmas day was a blast. A new friend of mine who owns a shop sent us the most hysterical assortment of gimmicks - right up my alley. We had Santa hats that sang and gyrated, monkey sling shots that made jungle sounds on impact, flashing necklaces and glasses; you name it- we had it! The boys and I laughed the day away, passed out cakes and cookies to fellow patients and Jan brought up Jade's famous chocolate oysters and the best caramel covered apples you will ever eat..The room was decorated to the hilt and we had beautiful hand made little Wellfeetian people snowflakes all over the windows. As I tucked Caleb in for the night he open his eyes, held his hand out for mine and whispered "thank you". I will always remember this day as one of the best..we were all together- bottom line.
The last dose of antibiotics is administered tomorrow- on the 31st Caleb will have another lumbar puncture and then we will see if we get the green light - perhaps midnight on New Years eve I will once again be in the kitchen making my celebratory homemade donuts to bring in the Year. See you at midnight!
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20 comments:
Great news, so glad you all got to enjoy Christmas together. Fingers crossed waiting for the next round of good news
Dear vonLinday/vonPotters-
This is great news indeed. Sharyn, the joy in your voice today is so palpable, it makes my heart full. I hope that the new year brings with it many more joyful occasions for you and yours.
Happy New Year-
Audrey
Wow, it sounds like fun was had by all! It's great to hear the joy in your words today. My heart smiles! Hoping for a restful New Years Eve at home...you sure deserve it!
~Barbara
Sounds fabulous and like you had a blast! Maybe is was never meant to be any other way. I will pray that your New Years is in Wellfleet.
Ali Manchester UK
That all sounds so wonderful. Keeping fingers crossed that you will all be home eating donuts soon.
Love, Susanna
keep up the great work caleb! we are rooting for you. here's hoping you can ring in the new year with donuts! i am so glad you were all together on christmas.
love to all of you!
amy in ct
Such great news! I love you guys! xox sky
No one deserves more to have such a happy day than all of you.I hope and pray that this is the beginning of many such days....a whole new year full!
As always with hope,
peg from PA
So nice to hear that you had fun on Christmas!!! Love the pictures!!
I know you've heard it a million times, but your writing is so beautiful, and it's not just your writing, but your perspective, your outlook, and your whole wonderful self. Thank you for all of it. But mostly, thank you for making it so that every time something bad happens, now I can smile and accept that there'll be some poo to step in along the way!
Wishing peace and joy to you and all you hold dear...
I love you guys. Thank you for giving us this wonderful image of you all having fun. Keep it up!! You give the rest of us courage to face our own crap with a little more humor and a little less fear. Happy Holidays!
I have been checking in on you folks since linking to your blog a couple of months ago.
I really felt compelled to comment on what an amazing family you are. Here you are on Christmas in the hospital, and having faced the most horrendous year ever, and this latest entry was just so amazingly positive.
You are all a living lesson for how to deal with these huge stumbling blocks in life.
Sending lots of good thoughts your way from Canada.
We've been thinking about you guys a lot over the holiday. It's great to see the photos of everyone, and I'm continually amazed and inspired by your ability to appreciate and enjoy each day as it comes. It's something I really find myself thinking about often and trying to emulate in my own life. Of course, my boss may not like it and definitely doesn't understand, but I've renewed my committment to sneaking out of work and spending more time with my family and with whatever alcohol we have in stock. happy holidays to your wonderful family, with much love and our strongest wishes for New Year's at home,
Neil and Carrie
Love the photos and 'Christmas Story'. Glad to hear the good news that Caleb will be coming to Sandwich for rehab. We should be back in Wellfleet to see the New Year in and to help celebrate your return to our woods. Just a Bang! Bang! Bang! There's no better place to be. Hugs and God Bless, Natale & Peter.
RHCI in Sandwich is such a wonderful place Sharyn and you will fit right in there. I live in Sandwich and if you need a place to crash I would be honored to open my home to you.
Blessings always
J
Sharyn,
Your post begs the question to me of your friend with the shop that has gadgets. Is it Shop Therapy in Provincetown? Wow! Merry Christmas!! Glad you guys had such a great day!!
Kevin
Sharyn, Just got in from upstate N.Y. where WE got monkey slingshots too! 14 of them flying around my cousin's living room. Glorious cacaphony, as you can imagine. Best wishes, David W.
Great pictures. Laughter is very powerful medicine and your Christmas was probably worth of week of therapy.
Singing and gyrating Santa hats, what a great idea!! Though I got enough strange looks just walking around with a "normal" Santa hat. Go figure! Some people are just so serious.......Glad to hear you guys aren't among the them.
I'm so glad to hear you had a Merry Christmas with a capital M. It has been said many times before but I have to comment again on how reading your thoughts and your amazing perspective has really changed the way I think- changed if not who I am- my idea of who I wish to be. As the working mother of 2 young children I find I am often feeling short on time and on patience- reading you words all these months reminds me to try and be longer on both- appreciate each moment for what it brings and my family for who they are - right now. Thank you for that gift- I will certainly be taking it into the new year with me.
Best wishes for a happy and most importantly healthy New Year to you and yours.
Laura in CT
Sharyn,
I woke in a foul temper today-seeing red and feeling major post holiday blues(or PMS)either way,the thought crossed my mind to check out how the Potter clan was doing, and sure enough reading your blog put things into a much better perspective and I feel the heavy dark cloud lifting...peace and healthiness to your whole clan and all who touch it. may the new year bring joy and serenity(and laughter)...
I love flashing necklaces and monkey's slinging stuff around!!!! You are all so very lucky!! Happy to hear you had such a lovely holiday....Peace and Goodwill and whatnot....amystj
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