I am so sorry to report this, but we have had a set-back. This past Wednesday, Caleb had to be brought to Cape Cod Hospital, because he was having severe stomach pain at the site of the incision in his stomach. When he had the shunt put in, the valve went from his brain to his stomach, where the extra spinal fluid would drain into, and this is where caleb was having pain. Sharyn brought Caleb to the hospital and he had a fever and his white blood cell count was high, which means his body is fighting an infection. They withdrew some spinal fluid from Caleb and they discovered that he has bacterial meningitis again.
He was then brought to Mass General Hospital, so they could figure out where the infection started. They then discovered that the infection started somewhere within the shunt, and the infection traveled to his brain. This morning, Caleb's shunt was removed. The Infectious Disease doctors are looking at the cultures of the bacterial that were found in Caleb'ss CSF ( Central Spinal Fluid), and when they figure out the specific strain that he does have, they will then know what specific medication to give him. Last time he had bacterial meningitis, the medication took 3 weeks to go through its cycle of healing, so we think that Caleb will be in the hospital for a little while again to heal from this.
I will give updates about Caleb's condition when I hear new information. Right now, he just got out of his surgery to remove his shunt and he is recovering with his mother by his side. Mass General Hospital has become a second home to Caleb and his family, and we are on the floor that we have visited with Caleb many times before. The doctors and nurses there are amazing and so caring.
The main reason that I am writing this post, is because we need everyone to start praying again. Before, as you all know, the prayers and positive thoughts worked. Right before Caleb was starting to have stomach pain, he was going really well. There are many different types of bacterial meningitis and we are just hoping that he does now have the same strain as he did before. Lets all pray that he has a less dangerous strain and pray our hardest that Caleb will get through this and fight his hardest like he always has. I love you all.
-love jennie
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58 comments:
This is awful news. I have just recived my hoodie and will not take it off now till he is well. What a set back. My prayers are with you as always.
Ali Manchester UK
sno or no, i'll be on the lawn at nine tonight, and i doubt i'll be the only one.
yup...sounds like it is time to rally
and really pray hard. see you all there tonight at 9. hang in there guys, we love you all so much.
You are all in my heart.
Zana
The prayers haven't stopped, but I will say some extras for Caleb!
Jennie,
Thanks so much for the update! Hang in there. The prayers will work again. I don't think anyone had stopped. My thoughts and prayers are with you all..
Kevin
We haven't stopped thinking about Caleb and we'll keep sending along all of our thoughts and love. We're with you all,
Love, Neil and Carrie
thank u so much for ur comments and support everyone. i am in bed really sick, and that why i can not go up and see my caleb. im lying in bed and sobbing, and choking because i cant breathe. i was already thinking about meeting 2night and tim bob confirmed it for me.....i think we all should meet on the town lawn 2night at 9pm, like we always used. bring ur gloves and jackets, because it might be a cold one. i hope to see everyone there. love u all
-jennie
You have our fervent prayers.
I am so sorry that Caleb is ill. May the love and prayers of his many friends bring him home again soon.
love,
Mia
My strength is with you now. I will be rallying at six tonight (9pm your time) in order to send my positive thought/light/and healing with you all :)
Lily
tears...
prayers have been flowing & now it's tears.
will be there 2 night w/ lb & all... on the "LAWN OF LOVE".
xoxooxxox
I am pryaing for you all! We can all stream some good positive thoughts!
Lyndsy Woods
Jenni. i cant believe this has happened again. I wish you to feel better and for caleb to continue healing. Love you too. Thank you so much for all the details. It's so hard not knowing what is happening at every moment for you caleb and the family. I am working tonite maybe able to make it though. thinking of you always. Love Grace
Everyone on this blog thinks of Caleb daily. Our collective prayers are there with Caleb now and always. Stay strong Jennie and thanks for keeping us bloggers in the loop.
Deb - Groton, ma
I was so surprised and sad to come to the blog and find this post. My heart just breaks for everyone involved. Of course, you have my prayers, my positive thoughts, and my concern flowing your way.
Amy from western MA
My prayers are with Caleb, and all of you, every day. From a continent away.
Prayers and positve thoughts are with you all
prayers, positive thoughts and hope to you all.
Sorry things are taking a difficult turn in the road. Everyday prayers are offered- today with new resolve. During the summer I spent hours meditating at the beach, walking, etc. Praying for Caleb, all of you, all of us. Thank you for leaving the space open for us all. I was talking with Kimmy and planning a trip to pick up our hoodies and she told me Caleb is back at the hospital.So here I am again- sending healing light and energy. We are here, loving, caring , whatever comes. Jennie, take care of yourself- know we all pray with you whether on the lawn or in our hearts. ann m
Oh what news! I will be with you all on the lawn in sprit. My love goes to you all again and again. Jennie, feel better and know that Caleb and his family (you included), are surrounded by love and light.
Alex xxx
Oh Jennie,
I am so upset to hear this.....
Caleb has never left my prayers and I will continue.....
I haven,t posted in a while, but I check the blogg everyday for any news....I wasn,t expecting this.
We will all be praying!
my love to you, Tracy
We're all with you, prayers sent on ahead--Love, El
saying power prayers in Connecticut for Caleb -
Patty
Sending more prayers and positive thoughts and love. Those of us who are "out here" and won't be on the green with you tonight have nonetheless been with you all along and we will remain with you. Always,
Mom in CT
Oh Jennie - I'm so sorry!
Just like before - My body is here in NH but every other bit of me is with you and Caleb. I'll be lighting my candles in Portsmouth and joining you in spirit on the lawn tonight at 9.
Please wear your warmest clothes and biggest boots - We don't want you any sicker than you already are.
You are all in my heart and my prayers, as always.
With big love and heaps of hope from me and mine -
Susan
dearest jennie,
hold on tight, this roller coaster ride has some major dips and turns...the candles are still lit daily here for Caleb and prayers have not stopped and will not stop until he is fully recovered and he WILL recover, you will all recover, but in the meantime, stay strong, love each other, and hold on tight.
Much love and light sent to the vonLindsay/vonPotter clan and of course to you Jennie.
Peace to you all tonight-
Audrey
The stars were twinkling in the sky last night. I will pray and wish on each of them tonight for Caleb's comfort and joy.
xoxoxoxoxox kk
Prayers by the dozen for Caleb.
Be brave.
Just as the flag keeps on flying, so will our most fervrent wishes for healing for Caleb./Users//Pictures/iPhoto Library/Originals/2007/Roll 29/IMG_1877.JPG
Dana & Mike say "We will definitely keep the prayers and good vibes coming for Caleb and all of you! Wish we could be on the lawn in Fleet tonight but we will be there in spirit. The best to all of you....Stay strong!
Love xoxo Dana & Mike
.......and who stopped praying? Even being modern pirates in the Caribbean for two weeks, our thoughts were still with Caleb, family and loved ones. Prayers by the score.....
God Bless and Hugs ~ Natale & Peter
My heart goes out to all of you, Jennie, and my prayers and hopes for healing and strength go with my heart. You have been through so much and it seems so wrong for this to be happening, but none of us know what is around the corner....we just have to deal with what's handed to us, and sometimes that is just too hard.
But know that we are all together in this, and looking out for the best possible outcome. Caleb has gained much strength in these past few weeks and will be better able to fight off infection. With all of our powerful prayers, we send you hope, healing, love, and peace. Take care of yourself, Jennie, Caleb needs his sweetie.
As always,with hope,
peg from PA
Jennie,
I am so sorry to hear this, but thank you for letting us all know--I will of course continue to pray but will now also go downstairs and light a special candle on the mantel for both you and Caleb to heal quickly...and Peg from PA you have also been in my thoughts and prayers. Alycia
Sending healing thoughts and prayers to you Caleb, and your family.
Judy in Atlanta
Hi Jen,
I am so sorry to hear about Caleb's setback. He is so strong, I know he will get through this one too! Our prayers are with you all. Please take care of yourself and get better too.
Love you.
Caleb is our hero of healing!
His healing will heal all of us. Since the turn of this millennium, we have all been under trauma by a created catastrophic event that threatened our way of life.
Caleb represents the freedom of choice & free will, the sincere choice to live a life in bliss of love, gliding on the wave of happiness and freedom!
When Caleb heals, we all heal.That is why we need to pray & get the whole world to pray together for healing.
Heal, heal, heal, arrrh!
Oh my Dears, we have never stopped the prayers, concern, love for you all. Healing is an amazing thing. It is constantly in motion, responding to the ebb and flow of life. Caleb in on a healing journey, and as hard as it is to see him back at MGH, in surgery, pain, it may be what has to occur to bring about optimal health. For Caleb to find his balance, there needs to be some fine tuning. We have seen this in the past. He is strong, courageous and full of life. WE support him in his healing process, and hold you, and all his loving family in our warm and loving embrace.
In this Season of Light, we are with you in thought and prayer, and never very far away.
Please give Caleb and Sharyn, Max, Kai, Jan, our love and Best wishes for continued healing. Jennie, take care of yourself, receive our healing prayers with much affection and great Love this night.
WE remain with you all.....in thought, prayer, hope and gratitude for the progress that has been made, the strides that are being made as I write, and his complete heaing in the days to come.
Never far from thought....and Blessings to all the Blogging community that have made this such a dynamic place of healing, recovery, compassion and Love.
In Love and Gratitude,
Melinda and Mari
I was so shocked and saddened by this unfortunate turn of events but prayers have and will continue for Caleb. You all are so strong and will withstand yet another crisis. We have every faith in Caleb's quick recovery. May God's rich blessings pour down upon you!
Sue, Christa, Jeff and Kimme from Ohio
Jennie, I am sure you ahve already heard this but I am going to say it anyways just in case...Bacterial menegitis is very contagious. You say you are sick..please watch your symptons and let your health care provider know that you have been in contact with someone who has Bacterial Menigitis. PLease be careful
Prayers, of course, and hope that today brings better news. I have tears in my eyes as I imagine you all once again on the lawn at town hall. Caleb - you are encircled by love, as are those who love you. May it give you all the strength you need to fight this new battle. Sharyn, special prayers to the Blessed Mother for you. May She smile down on you and lift your spirits and give you comfort. Prayers for healing, peace and love......
Jennie, the previous post about contagion is quite serious. Please see your doctor right away and confirm that you are well.
Jennie,
You and Caleb and the family are in our hearts and prayers. Caleb is in very good hands at MGH. Please take good care of you!!
Blessings and love,
Janet and David
Prayers, prayers and more prayers!
We haven't stopped but will pick up the pace.
Tom and Maria
I hope that those of you who were on the lawn last night felt the presence of those of us who couldn't physically be there - There were 5 candles on my mantel - one for Caleb, one for Sharyn, one for Peg, one for Jan and Kai and Max, and one for Jennie - Please take care of yourself, Jennie, and see your doctor as soon as you can. Meningitis isn't something you can ignore, and if you do have it the sooner you begin treatment the better. I can't help myself - the mother in me is feeling fierce and protective this morning!
Big Love -
Susan
thank you for everyones concern about my health. i have called my doctor and i told him about caleb and i how i was feeling. he is not to concerned but i tracked my temperture for the whole day yesterday, and thank god it went dowm. i am feeling alot better now, so there are no concerns of me having meningitis. i think i am just getting the flu, but with everything else going on, i felt my body was reacting even worse to being sick. i will talk to sharyn sometime today, and i will soon give an update. thank you again for everyones concern. love u all
-jennie
My thoughts of love and healing are going out to the lad (and you all) daily but I will be sending out extra thoughts now. I wish I could be with you all on the green. Know that I am there in spirt and heart. I miss you all so much!
Love,
Kim
I have been wearing my hoodie all day and have just adopted Susan in Portsmouth's practice and have lit 5 candles for Caleb; Sharyn; Peg; Jennie; and Jan, Kai and Max. You are all in my thoughts and prayers.
Alycia
Oh, Jennie, how awful but how kind of you to let us know. I am glad you don't have it but poor Caleb! I agree with the person who said he is in the best place right now, where he needs to be but just before Christmas! Maybe Wellfleet could celabrate Christmas in July, just for this year, by then Caleb ought to be feeling much better.I Will be generating possitive thoughts and sending them along. Feel better.
Love, Lily's Mom
Jennie, thank you for updating all us bloggers under these difficult circumstances. I was relieved to get to the bottom of the posts and see that you are feeling better.
You and all the Lindsey/Potters are in my thoughts and prayers every day, and will continue to be in them. I will be praying especially hard for Caleb today.
NY/Wellfleet Mom
Hey to all on this blustery and bright Sat-ur-day on Cape Cod.....Last Night the "green" was WHITE....and we gathered at least two dozen strong ....under the lights of Wellfleet's Gemini Twin Christmas Trees....not a candle would stay lit so we deferred to Dierdre's Lamp flame...and passed it around the circle as we circled a patch of "clean...untrampled....smooth snow...on the Abiyoyo side of the "green".....twas a strong silent Prayer circle as we sent our healing vibe NW toward MGH and the Caleb Tribe here there and everywhere ...We focussed what we have toward the lad and the von Lindsay/von Potters, all.....a deep silence it was til the final aaaaaaargh....when a few fell into the center to lay down a few snow angels at wellfleet's Center.....and then....and then...well....the snow was awfully....terribly...wonderfully...winter-fully good for snowballs last night and the air in the center of FLEET was full of 'em.!!!..Thanks also to Kevin for the Piratey....."warmth" for the circlers around.....and a good and pirate-y time was had by all...We missed "the Lad" in the midst of it all.......good healing to ya Caleb!!!.....and for the circlers around in Boston....and points well east and west....north and south...we all will do what we can - from where we all are..cuz: as they often say..."We're all Here...cause we're not all THERE"...blessings to our Caleb circle....The Fleet prayer Circle was alive in the snow-light last night.....be well!!!....light!ly....ch/dad
I write with a lump in my throat and a heavy heart. My thoughts and prayers have not stopped. Give as many hugs to Sharyn and Jan and the boys as they can stand. Wish I could do it myself.
My spirit will be with you all at the prayer circle.
Love to all. Penny on St.John
We are praying for Caleb and all the family. Our hearts go out to all of you! Fight on Caleb!! We know you´ll make it!
Thanks ch/dad for the wonderful description of last night's prayer circle. The Fleet is indeed a magical place....
Prayers from St. Paul MN....strong, steady, prayers...
hello everyone,last nights circle was beautiful and thanx to CH/DAD for giveing everyone a view.we will hold another circle tonight so anyone cedar,amy st. john,or i haven't called show up.to penny st. john,your daughter had her first snowball fight last night.i hope i'm not spoiling good news.we must send luv and prayers to caleb and help him squash this thing.my luv and prayers to sharyn,kai,max,jennie,carol,ray,jan,sarah,buff,spud, and most to the lad.arrgghhhh.goatlady please light an extra candle for those in cyberland that can't be in fleet.luv timmy
More candles lit and group prayer of healing coming from the west.
all my thoughts are with you. Back to breath- back to one moment at a time. I'm praying with each breath -
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