I think we must be giving the impression that we are gluttonous for hospitals but I assure you that we are feeling frozen in time, stuck in a funky plaster of Paris. Yes, Caleb is back for another round and as discouraged as we could choose to be, we were indeed warned and we are indeed trying to focus only on the positive. Caleb has a staph infection in the CSF fluid once again, but not the same ugly bugger we fought before, but a gentler cousin- one we can tackle easily. Caleb is stronger on this round, was home long enough to gain some strength along with some weight and is no longer a welter, but instead is ready to be in the ring with the big boys. He is beckoned from illness by my feminine yearnings and I am asking for the powers to be to handle him like clay; to mold and fold life back into him and to shape a fine destiny. It would be untruthful to say that we are not frightened. The Neuro's warn us that with each infection, the cure becomes more and more laborous........
Coming back so quickly? - well it has been difficult with another Holiday facing us with yet another prospect of being here instead of home. Kai, Max, Jan have rallied and Aunt Carol arrived with Christmas decorations. They are strong when I can not. I have a slow numbing feeling and I am as removed as the compact staring back at my face. It is the same old, sorrowful moon in the night sky who keeps me company and I shiver through the darkness along with him waiting for the warmth in a ray of light while Caleb remains angelic. mumsie
Saturday, December 15, 2007
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43 comments:
oh mumsie.... how we love and pray for your caleb! he's a fighter and thank god for that! BIG LOVE to you too dear mama....... stay FIERCE! you are stong!
~emenating our most positive vibrations for the lad~
The Punch clan
Sharyn, I just read Jennie's post of yesterday and yours of tonight, and I'm so very sorry to read this news. I'm at a loss for words that you haven't heard and read so many times before. We are all with you in spirit. Our hearts and love and hopes and prayers go out tonight to Caleb. May this infection be knocked down quickly and your stay at your MGH 'second home' be brief. Stay safe and warm through this storm (and the one outside as well.) We are 30 miles north of you and will be thinking of you all night.
Jerry G & family
Sharyn -
The "same old sorrowful moon" may be looking over your shoulder, but the sun will surely rise and thaw the icicles that threaten the edges of your heart. You are strong and bright and too warm for the dark bits to sidetrack you for long. And, Yes, Caleb returns to MGH this time stronger, "ready for the ring with the big boys" - but he's also armed with a taste of home...the beach, his own bed, his family, his girl, his community...and I'd venture a guess that all of this will make him an even stronger opponent for whatever infection or complication tries to sideline him. He's fortunate, too, to have the best coach/manager/Mumsie that any fighter could ever hope to have - You will keep each other strong. The fleetians on the lawn tonight and those of us joining them in spirit will send every bit of warmth that we can muster your way - please feel our arms around you when you need them and don't be afraid to ask if there's something more that we can do.
Love, sunshine and more love,
Susan
Sharyn, How could something as ugly and scary as a staph infection be expressed so poetically, so beautifully? Your words express so much--it is impossible not to feel your love, your fear, and your pain.
My prayers are wtih you all.
Amy from western MA
Sharyn,
Thanks for keeping us posted. Again we are glued to the blog, checking each time we walk away from the screen, waiting for news, with all of you in our thoughts.
Stay warm and sleep well tonight. Caleb's strength and spirit (and all of the love from you and Jen and Max and Kai and Jan and all of the rest of us) will beat this!
Love,
M
Dearest Sharyn,
I hold you all in my heart this night, by the light of the moon, I carry you and send you peace.
Audrey
I remembered this poem of Rumi's after I posted my last note - It seems so perfect right now ...
Guest House
This being human is a guest house
Every morning a new arrival.
A joy, a depression, a meanness,
some momentary awareness comes
as an unexpected visitor.
Welcome and entertain them all!
Even if they are a crowd of sorrows,
who violently sweep your house
empty of its furniture,
still treat each guest honorably.
He may be clearing you out for some new delight.
The dark thought, the shame, the malice,
meet them at the door laughing,
and invite them in.
Be grateful for whoever comes,
because each has been sent
as a guide from beyond.
more love,
S
My Dear Sharyn......Remember what has brought you all through these many months, and will again. Your Caleb is on his journey (which at times feels more like Mr. Toads Wild Ride)of wellness and healing. He is much more prepared for this round than previous ones. He will do his best, and with all the love and support of his beautiful family, friends,and this cyber community, he will make it through, once again. Be grateful for the time of strengthening, support and encouragement received at home.....the better to deal with these latest challenges.
Sharyn, you are so strong, and have such a kind and generous spirit....Caleb is so lucky to have you as his mumsie. You and he(with the loving support of Kai, Max, Jan) will once again persevere, and will be home before you know it.
Please know that we all stand with you, and send you loving and healing energy to deal with this new challenge.
While we may be awaitng a new storm this night, rest assured that the sun will shine again.....and remember Amazing Grace.... and Grace will bring you Home.
In Light and Love,
Melinda and Mari
Sharyn,
Thanks so much for your time to update everyone! I think your going to win a Nobel Peace Prize. Or at least a bottle of Riesling! I know... Wise ass!
Your strength is Caleb's strength...You just don't have to get so damn good at it though...We are revising the 2008 Holiday schedule. Can you please advise when holidays should be observed next year. You guys aren't missing any holidays,your just having them on different days. What difference does a day make? What day of the week where you born on? I can't remember mine either...
Kevin
Our thoughts are with you and your boys, Sharyn.
xo Catherine
O Sharyn, You don't have to be strong just being there with Caleb is all you need to do right now. This sounds like good news, not the same nasty bug as last time and of course Caleb is much stronger now as well. Stay snug in the storm and come home soon, Love, Susanna
Sharyn, you may feel alone at some points, but you are not, we are all behind you and Caleb. He is a heavy weight in for the full 12 rounds and will be victorous, with everyone there to see him.
With you in his corner, its the only way things can go!!
Thinking of you and Caleb always, (I have the hoodie now to prove it) Ali Manchester UK
What good news that it's a gentler form of staph and not bacterial meningitis! And how wonderful for you to have the presence of Aunt Carol with her bottomless pit of strength and energy. Bet Caleb's room is the best decorated in the hospital!
Stay close, warm, breathe deeply, and know you are all in good hands.
CALEB>>>LISTEN>>>>> We wish you a merry Christmas We wish you a merry Christmas We wish you a merry Christmas and A HAPPY NEW YEAR...I wish I could be there to sing it ( Trust me you don't...I can't sing) but my love, thoughts and (always) prayers are with all of you.............I worry about Jennie...is she ok? bacterical men. is contagious and she was sick ????
Sharyn, Your post today has only proven that your brief stay at home has only increased your literary skills! I pray you are home with your family soon!!!
I used to think that I had problems, I read this Blog and say to myself "Shut Up".
We're all saying the same things-this is a long and twisting road, etc.-but we're all still with you, holding you firmly in mind. Caleb will prevail. There's the same determination around town and increased talk not only of the terrific mom, brothers, dad, etc. , but also great admiration for Jenny and the way she's responded to this. Best to you all. Jack
Dear Sharyn,
Caleb has regained strengh and I feel he will respond well. I miss you both. Tell Leb Mike Ds mom is praying and drumming for him to get up and be well. we love you Caleb you sweet man.
Sharyn love and hugs to you and Jan the boys and spudley.
Positive thoughts only!!!! Merry Christmas - the true meaning of Christmas.
Love Donna and Fran
Sharyn, I have been following Caleb's progress ever since I vacationed in Truro the week following July 4. I can't even begin to fathom your experiences down this long and winding road. To add to the positive thoughts, I created something special. As I was experimenting with this website that lets you create a snowflake, this design evolved. I hope you will check it out. You have to go to this link:
http://www.popularfront.com/snowdays/
and search for snowflake # 5542837
You then have to click on the tiny little arrow pointing to the tiny little white dot falling-this is the snowflake!!!
The name Caleb was intentional, however, upon looking closer, I see people holding hands in a circle, with hearts above their heads, and perhaps even the mighty sea in the center...this reminded me of a certain prayer circle that was held on surf boards during the summer. This image was not intentionally designed, but none the less was meant to be! Stay positive!
Brenda from upstate New York
What a beautiful post! Glad to hear the infection is easier to beat than last time. You are an inspiration to me, Sharyn. Again, there is lots of energy flowing up to Mass General from little old Wellfleet.
Sharyn,
I know all of us wish that there was something more that we could do. We are here as we have been. Through your words we are with you, praying for Caleb, channeling healing light and gathering in others.
I have always liked to view the moon as the nightlight of the great spirit. Always on, ever changing but always constant. Even when the clouds are thick its light will occassionally push through. Alone in the cold night but a beacon that you are not alone.
As that moon keeps you company at night know that as we also look at the moon from were ever we are, we add to that light, gently smiling and there with you and with Caleb and with Max, Kai, Jan and Jennie.
I feel ya old lady. Keep your head up. Lean on Max and Kai for some strength. I think Caleb wants to see his cute nurses again. haha Call if you need anything.
Much Love
Judith
Hi Sharyn-How beautifully you express your sorrow and pain but the love and hope, which are ever present in your heart in this Funhouse of Smoke and Mirrors life, shine through even more. I never stop checking this blog nor do I ever stop thinking/praying for Caleb, you, and your family. There is a special place in Heaven reserved just for you and your undaunting love, support, faith, and long suffering. Caleb will beat this once again, of that I have absolutely no doubt, and we hope you are back to your beloved home for Christmas. I am assuming the Cape got slammed a few days ago with 12+ inches of snow? Maybe we will have a white Christmas. We have a bit of snow on the ground here in Ohio.
Thinking, praying and hoping for you more than ever........
Sue, Christa, Jeff and Kimme from your old stomping ground!! (I was just talking about the party you had when we were Seniors out in the fields.....remember? That was a wild one!! I will carry that memory to my grave!!)
Hi Sharyn,
Last night I had a wonderful Dream. Caleb was in it... vibrant and bright. Talking like he never had a problem talking...being a loving soul as always. It was a great thing to wake-up and remember this morning. Maybe it was a sign that all is headed in the right direction with him. You know that saying,"What doesn't kill me makes me stronger"...Well, I fully think that that applies to Caleb. He WILL come out of this stong and allert and as great as we remember him.
Please don't get down,Sharyn!!! I know it's VERY VERY difficult. But, please try. I know as a mother watching our ordeal with our Daughter was so heart wrenching for me that I made myself physically ill, and right now my Caleb has either a bad cold or the flu, and I just feel so terrible for him, because he is completely helpless as a sick toddler.....I completely understand how you are feeling.....But try your best to keep that "Sharyn Glow" that we all LOVE about you.
Tell Mr.Caleb Von Potter that my Family sayes,"Hello"....and, "Hello" to all the Boys"!!!
We love you all....
xoxoxoxoxoxoxoxoxoxox
~Nicole Miner :)
Hey Sharyn,
We love you all and are thinking of you always.
Love,
Katie and Mike
May your soul be at a gentle ease and may love shine on your waking eyelids each morning.
Dear Sharyn,
When Amy called me the other day and told me of the latest developments my very first thought was "OK,back to the blog." So here we are once again jumping into positive action and healing thoughts. I don't know how you can do this up and down thing but you are and the strength you give and the love you have for this wonderful young man is beautiful beyond words. I feel it within you Sharyn and it is very powerful and always will be. May the meds grab hold of the infection and send it on its way as quickly as possible. I am thinking of all of you always.
Love, Penny on St.John
Sharyn,I am going to put down the kid gloves for a minute to say that this whole situation really sucks...I know how you are feeling to a degree.... sometimes I feel that if I hear one more person tell me how strong I am, that that which does not kill me will make me stronger, that the cosmos never gives one more than one can handle there is a voice inside my head that screams to the heavens I am already Hercules, Charles Atlas and Superwoman! I don't want to be strong I don't want to need to be strong I want for this to stop and life to be back as it was, I am not Zena the warrior princess, I am just me and I don't think I can get any damn stronger and this has already been too much to handle and I don't want to handle it anymore enough, enough already!!!!! And then after my inner self has had it's tantrum and my outer self has had a pretty good cry ( a good cry is highly under-rated as a catharsis...) and I have splashed the cold water on my face and dropped the visine in my eyes, a strange thing happens. I do start to feel a bit stronger, I do start to allow the strength from others fill me, and I do start to realize that I can handle more, that I have not reached the end of my rope just yet. The emotional toll of all of this is a terrible strain on your psyche, and it is ok to feel and express your sorrow . You have plenty to be sad about. Just don't forget that all of you are ever in our thoughts and prayers and hearts, that our love flows to you in an unbroken stream of healing and peace and that our strength is yours for the taking when ever you need it. You are never alone in this as our hearts are as one, and love, hope and light will prevail.
As always, with hope,
peg from PA
Dear Mumsie:
Our thoughts and prayers are always with you on your journey with Caleb...it is so hard to remember how far you have come during this whole process and how much he has overcome to get where he is...one step forward and two steps back...that is how it is sometimes...Caleb is a strong fighter who will prevail Keep the faith!!! And even on the darkest of days...as I said before...There is always always something to be thankful for...
Peace to you and your family and friends on this day...
A mom in Annapolis CT
DEAREST Sharyn- We think of you often and pray that this too will pass- we love you- Sassy
Good luck, good wishes and good love for all of this, Sharyn. He will pull through.
love,
Mia
Joining all of those in cyberspace who can't be there with you in Wellfleet or MGH.... lighting candles every night. It's such a tug of war between fierce fighting and calm acceptance.......but the piratey bunch are surely fighters and when you feel your strength waning, Sharyn, Jan, Max, Kai, Jennie---just know that there are legions out there sending their powerful prayers for health and peace to you all! You are encircled by boundless love and energy.
Sharyn and Jennie,
Tell Caleb to hurry back to therapy! We all enjoyed working with him at RHCI and are looking forward to helping him with his continued progress. He is such a hard worker! With all that he has endured, I have no doubt that he will make it through this bump in the road. Looking forward to seeing you again real soon.
Jen (and everyone at RHCI)
Sharyn-
Please, remember what you pulled out of your self recently...
"...As for me- well I can only say that out of this tragedy - a tremendous treasure has been placed in front of us. We are stronger now than ever and we are each seeking out the gift that Caleb has brought to us. This has touched each of us personally and has shown us that a slightly lower form of us has transcended into a slightly higher one-- we are becoming a better self...".
loveandlight
t
Christmas is a time for good things to happen - you are in my and my childrens thoughts and prayers caleb-- get well soon - never give up.
sue and kids
Oh Sharyn, please just know that you are in our hearts and in our prayers. Love, Sarah & Annalees mom
Potter clan-have been sending prayers and love to you on the most exponentially strong waves that i/we can muster and will continue to do so. robin & john
Praying for you, Sharyn, and of course for Caleb.
So glad Caleb gained much strength before this happened. Poor baby having to take that shunt out, and back in after the infections clear?? I'm glad you continue to keep us updated Sharyn, seems like the blogging is good therapy for you as well by what you write. Hope you are seeking out reliv at this point. Praying for your family always and have a special gift waiting for Caleb when I can see him.
love sas
Well here I am again running to the nearest computer whenever I have a moment to check and see what new updates there may be. It feels exhaustingly familiar to picture you all up there in Boston, at the hospital, at Caleb's side. I really could go the rest of my life without that kind of familiarity. So many tests in life and each one makes us stronger...blah blah blah. it sucks. Caleb is stronger than before and he will be stronger still after this round. Tell him I love him so. Tell him we had a giant snowball fight on the lawn the other evening after his prayer circle. It was fun and there was lots of laughter, and Ari got snow down my pants. Damn Ari.:) I miss your presence here as I always do when you all are far away. Wellfleet seems so different somehow with your absence. Thinking of you as always, and sending love, peace, and healing wishes out into the universe...me
Dear Sharyn, I am sending you warmth and love and thinking of you, Caleb, Kai, Max and Jan often. The Solstice is soon. The light after the darkness. May the coming of the light shine your way right on through this. So many twists and turns along this crazy journey. Go good amiga and know that it's temporary. You'll make it thru this.
much love Jenny H.
Sharyn and family,
Please let all of our words comfort you. They are from the heart. There is so much praying going on you have to feel it. This to shall pass and Caleb will be back in Fleet soon. In this season of giving please know we are all giving you, Caleb, and family as much positive energy as possible. Please stay strong, the candles are lite through out the nation. Peace and love always
Sharyn AND Peg from PA:
Thank you both for having the courage to write so honestly about your roller coaster emotions.
Sending tons of positive thoughts to Caleb and to everyone out there who needs them.
NY/Wellfleet Mom
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