Caleb's short term memory is eeking it's way back - little by little. When at Yoga he can now remember where it is he will find his shoes, and he is beginning to remember events which happened earlier on in the day. Just like with a newborn, there is no manual which helps to guide you through this. Brain injury is as unique as all of us are individually and alot of this healing is guess work. I am constantly reminded of the Neuor surgeons words to me as he sent us packing "Do just what you did before, it worked then and it will now." So I make him do his homework when he wants to go out and play, and I make him eat well and sleep well and we hold hands when we are walking in the woods or crossing the street.
Our big event is coming up so rapidly and I can feel the heartbeat increase in my chest when I think of all we have been through this past year...and has it really been almost a year already? I have elation and trepidation about this day- but I am trying to remember, it is only a day...and like all others the sun will rise and it will set and we will wake and celebrate the fact that Caleb survived, and we will sleep with dreams of a better tomorrow.
As I will guess all mother's do as their children get older, I pondered just which song I would want to dance to with Caleb on a wedding day..his wedding day . So I will leave you with the words which not only resonate with Caleb and I - but now with you as well.
"Have I told you lately that I love you? Have I told you there's no one else above you? Fill my heart with gladness, take away all my sadness. Soothe my troubled heart, that's what you do"
Thursday, June 26, 2008
Subscribe to:
Post Comments (Atom)
25 comments:
Sharyn -
So many people in Wellfleet are looking forward to the 4th of July and hoping Caleb will make an appearance.
And, as far as song lyrics go..Sharyn, "Unforgetable,
that's what you are!"
Roberta in Wellfleet
Hi Sharyn
Hang touch, strong one...your dance with that remarkable baby bird you are nurturing will be an awesome one !!!!
Keeping you in my prayers..
Ace
Hang tough, strong lady...that dance with the baby bird you hold so gently tody, will be an awesome one....keeping you in my prayers...
Ace
Those words will always be true.
Sharyn,
Every day is different, just as every one of your entries reflects a different mood and stream of thoughts. The anticipation of the t4th will be huge, you rightly point out that it is another day, and that it too will pass. You will be celebrating a happy anniversary, another year of life, as opposed to something much worse.
Love,
Claus
This news about Caleb's short term memory is the best ! Gail
Such a wonderful update that makes me smile as I leave work weary after a very long day. Hurray for Caleb! Hurray for the entire Potter/Lindsay clan, as you are a team.
Yes Sharyn what you are doing is working and will continue to work. I never doubted it.
Sorry we will miss the big event of the parade on the 4th. We will be on the Cape a couple days after but will be with you all in spirit.
Jeff
Hear, hear...
Jerry
Yes, the big day is coming...
and I expect that it will bring all sorts of emotions, both expected and surprising.
It will also bring many of us "from away" together to stand with you in support.
I can't begin to tell you how much I'm looking forward to being witness to Caleb's return to the parade and the sweet celebration that is certain to follow.
See you soon...til then, as always Big Love -
susan
sharyn
you've come a long way baby! all of you. and it will only continue to get better each day, i am sure of it.
we will be there on july 5 & 6 but will miss the parade.... but know that we are there in spirit!
love to you all
amy in ct
Great post Sharyn, you sound well. Although I will be at the Orleans parade, I will be thinking of all of you in Wellfleet. What a glorious moment it will be for all to see the pirate back in action.
Blessings to you all.
I can't wait for the book to be published and the movie to come out. Who do you see playing you and the boys?
J
Sharyn,
Such a beautiful, hopeful post. Don't be nervous about Caleb's big day. For surely, he will be encompassed by loving and supportive friends and fans who wish only to witness the miracle that is Caleb.
So brush off those dancing shoes, twinkle toes. It's never too early to start practicing.
With love and prayers for continued healing, Jackie in NY.
Beautiful!!!
We plan to be there for the parade, our 1st--what's the parade's route?
Does anyone have suggestions for
how early to get there or where to park to be out of the way? thanks!
Sharyn, I love your song. My choice, should my kids get married and ask my opinion... Louis Armstrong's 'What a Wonderful World!'
blessings,
Janet
Sharyn,
Great post!
Looking forward to the 4th as well!!
Kevin
so many moons have passed since our last pirate dance the streets of wellfleet... so many tears, so many smiles...
with excitement and nervousness i am getting ready to come down to come home. i am planning my pirate wench hula girl outfit... busting out the grass skirt... and pirate tattoos...
my heart has been with you all years before the 'accident' and it will continue beating as one of your own until the end of time and forever beyond...
i love you!!! and can't wait to see you soon!!!
YYYAAARRR!!
xoxo
Such a beautiful post, Sharyn. Ya got me with the wedding song. I cried.
July 4 will undoubtedly be a wild, emotional ride for you and your sons, for family and friends, and for all of Wellfleet. May the low points be brief, and the high points last long past twilight.
NY/Wellfleet Mom
For the morning sun and all its glory
Meets the day with hope and comfort too
YOU fill this Life with laughter, and somehow make it better.
YOU ease all troubles, that's what YOU do.
Anniversary dates have a way of bringing with them so many mixed memories and emotions. I'm sure this one will be no different. Just so you know, we're still out here thinking of you and wishing you well.
(a) Mom in CT
Fireworks will explode in celebration
for you all on the 4th. Although we won't be on the Cape until later this summer we are always there with you in spirit.
As usual Sharyn, you rock!!!!!
God Bless America and God Bless Sharyn, Caleb, Max and Kai!!!
Hi Sharyn,
Absolutely fantastic about Caleb's short term memory. See--I told you that what you are doing is working.
My visit to Wellfleet has been postponed until Thanksgiving however I will be thinking of you all this week and especially on the 4th!!
So I hear that you have a very interesting "watering device" that repels chipmonks-----I am still chuckling!!!!!!!!!!!!!
Peace,love and best wishes.
Penny
Oh, and I wanted to also say that Caleb's progress in the last year has been remarkable and am imagining just what it will be this time next year!! You will be dancing at his wedding sooner than later,Sharyn.
Have a wonderful weekend.
Penny
You are an inspiration. I, too, imagine a future that holds specific pictures. A friend of mine, when Orien Rose was in PICU, said, "I see her fighting with her boyfriend and then she is showing him her scar and laughing." What a picture to hold.
Thank you for sharing.
Geremy15Sharyn - Again, I wrote I LONG post this AM - and it was lost to signing in issues....frustrating - but here's the gist:
What a long road you and Caleb and your whole family has walked this past year - what a long way you have come - and triumphed!
On this July 4th - I hope you CHOOSE to celebrate just how far Caleb's strength and spirit has brought him....miracles have been worked -and so many lessons learned.
Celebrate LIFE that day Sharyn - the one you have, the one Caleb almost lost and the ever evolving one you and your boys share so powerfully.
CHOOSE to CELEBRATE!
NY Nancy
It is so hard to believe that almost a year has past....I am sure that it feels as if it has crept|sped by.
A belated happy birthday to all....I just figured out how to post from here... I too am a June baby, and am spending 2 weeks with my sister in the Canary islands on Tenerife and a 10 days in England in celebration of my 50th year on this planet. I will be in Cornwall on the 4th, but my heart, and spirit will be in Wellfleet with all of you who have become as friends to me.
Sharyn, you have been a wonder, and Caleb, you are fantastic, keeping your spirits and making such progress as seemed impossible a year ago. Keep going, keep fighting your way back, inch by inch , we are all beside you and have been this long year past.
I will be in Wellfleet on the 19th, and will tippy toe around town in the hopes of meeting up with many of you for a quick hug. Let´s do lunch!!
As Always, with hope,
peg from PA (by way of Tenerife)
thinking of you always, may this weekend be blessed with happiness and strength for all of you. Xo
Post a Comment